Wednesday 8 July 2015

What's Happened

In order to understand how much my life has changed in the past six months, I'm going to compose a list of what's happened.
So, as you already know, I went through my first break-up and my Dad had a nervous breakdown. This happened in October and December 2014.
At this time, I was studying an Art Foundation Course in Reading. This involved two hours of walking a day which really dragged my leg back to a very painful place. Even more frustratingly, I passed my driving test but couldn't afford a car, and was not able to use anyone else's. So I had no option but to walk, as no one offered me a solution and I couldn't afford taxis/buses myself earing about £40 a week. So my chronic pain increased dramatically.
Then my Dad spent a month in a psychiatric ward. This was a hard time, especially around Christmas.
He came out quite different, but in a good way, and things improved slightly.
Then my Mum and Dad broke up. It was a very one-sided thing, and made everything a lot more difficult, awkward and hurtful.
This meant that they put our house up for sale, and we should be moving in a few month's time.
Following this, my Grandad passed away. And it was cancer that took him.

This is a lot to happen in less than a year, but what worries me is that I haven't seemed to have reacted yet. I think that I now expect these things to happen, so it doesn't surprise me anymore. This sounds awfully sad, but I feel that I now appreciate it a lot more when something good actually happens; so I am thankful for the improved perspective it has given me.

I will make more detailed posts in the very near future, see you then

 
Sophie xo

Sunday 5 July 2015

2015

The past year has been one of the most difficult in my life. I've not kept up with my blog because I just couldn't find the emotional energy, but I'm not going to avoid the problem anymore; I'm going to work through it post by post.
The beginning of this year saw me revisit my psychologist after about a year of not needing a session. And that was hard for me to deal with. I felt like all of my tireless work to become stable again had just fallen off the face of the earth. I felt ashamed of myself to go back, which I know now is not a healthy thought, and no one should feel this way about revisiting therapy. I have been really struggling, and getting help again was the best thing I could've done.
So, what really made me get help again were two huge life events for me emotionally. Firstly, my boyfriend at the time broke up with me (which I can now laugh about, what a waste), and secondly, my Dad had a nervous breakdown.
Now, these two things came at quite a close time, and I found myself in somewhat of a downward spiral. This was last winter, and so my sister and most of my friends had moved away to University, leaving me feeling quite alone. I know that I'm exceptionally good at hiding sadness- and I had let my walls fall down for this boyfriend, so I definitely could not allow myself to share my feelings due to the trust issues he left behind. So, I emailed my psychologist and booked myself in.
I visited her a few days ago, but I have recently moved to my sister's house and so our sessions will now be over the telephone. This scares me a little, although we did discuss that my mood would improve staying here rather than at home, so it should be enough contact.
I have stabilised enough now to be able to write about these things on here, so I have definitely improved emotionally. I feel that the past seven months have equipped me with more experience and knowledge of how to deal with exceptionally hard circumstances once more, although it did knock me back in my journey of recovery.
I discovered that your first relapse is terrifying. I took me so long to struggle back to stability, and crashed back in to depression so quickly. Everything sort of came rushing back- the guilt, the self questioning, the confusion... it was all so familiar that I just automatically switched back into those habits. And to make it worse, I felt like I had just deluded myself into thinking I was happy for that year. And looking at it now, I had. I'm in such a happier and healthier place now, and very thankful for that toxic relationship to be over.
I just need time. And now that college is over, I have time to deal with what's happened to my family, especially now that I'm finally completely over my first relationship.
I want to break up what I had considered one post into a timeline of posts, explaining the different emotions I've been feeling, and their link to the habits I learnt whilst coping with my cancer survival. It will be a hard journey, talking about my dad and my parents splitting up, but it's important for you and I to understand the wider impacts of a person having cancer on those around them- making sure not to give in to the guilty feelings surrounding it.

Sophie Hartley xo 

Thursday 2 July 2015

The Future

Over the past six months, my life has changed a lot. I will make another post about what's happened, but I know that it's going to emotional to write about so I need to take time to properly prepare myself.
It's made me think about the future and what I really want. I don't want to look back on my life with huge regrets and see opportunities that I missed. This is why I've been taking every opportunity to do things even though they're hard or embarrassing or disapproved of.
I know now that what I want to achieve in my life is to make people aware of the emotional side of cancer survival. And I will strive to make as many people understand as I can, because it's important. And each impact that I make will continue to make further impacts, so it will continue to create ripples.
I will continue to speak up about the issues, and hopefully my audience will continue to grow. In this way, the families who have been affected will have a better chance of seeing someone who's been through the same struggles, which may give them a greater understanding of how to deal with certain issues and what to avoid doing (e.g. trying to forget what's happened).
So now that I have more spare time, I' going to focus on spreading awareness even more. So stay tuned for many more posts to come!

 
Sophie Hartley xo

Thursday 11 June 2015

Survivor Speech at the Life Styled By Us fashion show



Last night I was given the privilege of representing the BCRT at a fashion show, hosted by Life Styled By Us at the Bel and The Dragon in Cookham. And I must say that it’s really made me very proud of myself to see how far I've come. I’ve grown from a person who couldn’t even say the word cancer without it being stifled and forced, to someone who can comfortably stand up and speak about their experience. I know that I write a lot about it on here, and I'm used to people asking about my leg/limp, but this was quite different. I was asked to present my story to a room full of guests, in order to really connect the charity they were donating to with the event itself. And I feel like this was such a wonderful idea, as we often just buy raffle tickets etc. for the sake of it, without realising the actual cause we are helping.




I was a little emotional when writing the speech, but I was fine when reading it aloud. I think it helped that I didn’t know anyone there (other than my Uncle, who accompanied me), and that it was only about 8 minutes long. It seemed quite difficult to assess which parts of my story were the most important, especially considering the fact that my perception of it is very different to everyone else’s. It was also a bit of a challenge to write an upbeat, engaging speech about the hardest time of my life, but thankfully my positive approach to everything seeped through into this task as well.

What I think struck me most about the night was meeting the chef, who suggested the charity because his brother is currently battling Ewing’s Sarcoma. He thanked me, and told me that he was humbled by my talk.



And that’s really made me realise that all of this makes a difference. I feel so inspired to become more involved with the BCRT and to personally focus on reaching out to people on here, and also face to face. I'm thinking of possibly starting a vlog where I would pretty much discuss the same as I do on here, so that I can reach out to people who possibly don’t have enough time to read long blog posts or would prefer to watch and listen rather than read. I feel that this would also be a good platform to match a name with a face, and a face with a story, so you could all get to know me a little bit more. (Any advice on this would be truly appreciated!)

Sophie Louisa xo

Wednesday 13 May 2015

Newspaper Articles!



After wearing the cage for four months, Miss Hartley put on some heels. 'They were the best 20 seconds of my life,' she said






Good news for my awareness raising crusade; my story was printed in four newspapers last week.
The story was centred on the leg lengthening surgery I had, and the fact I could wear high shoes thereafter.


I'm beyond appreciative for this publicity, and I can only hope that at least one young girl with scars/disabilities saw the article and felt a little better about herself. Although the focus may seem a tad superficial, body confidence is what I'm all about. I'm beginning to love myself, and it's so freeing. Once you realise that you're the most important person in your life, you start to treat yourself with kindness. You wouldn't dare speak to anyone like you speak to yourself, would you? 
I spent so long being angry at myself, criticising myself everyday, yelling insults within my own mind. Would you spend every waking moment telling someone that they're ugly? Worthless? That no one cares about them? That their legs-after going through so much- should be covered and ashamed of? That would be disgusting, and we get enough hate without being our own worst enemy.
There have been certain influences in my life that support these harsh views of myself, but I realise now that I'm stronger than they are, and I can overcome it personally, without the need to treat them in the same manner. I made so many harsh comments in reaction to people telling me that my legs are ugly etc, especially focused on people's obvious insecurities (like their weight) and I still hold these with me, regretting every one of them. Reacting to negativity with negativity solves nothing, but it's so easy to do. If people make comments now I usually just smile and repeat their statement in a questioning tone, making them realise what they've actually just said. I feel this makes me feel better, and informs them on how to comment in the future. 
I can never erase the comments I made when I felt so bad about myself that I had to shoot other people down too, but accepting that they were an ignorant mistake and reflection of my own insecurities means that I've grown up, and has made me understand that I was just a mis-informed child. I know now that by accepting this, I am no longer a bitter person, and I am well equipped to deal with comments in a positive way.
I hope you're all making good progress with the journey of self-love too.


Sophie Hartley xo

Tuesday 7 April 2015

'Life isn't fair'

Reaching out to people I'm close to has always been a personal struggle. My beliefs have so often been invalidated by phrases such as this. It’s difficult for people to know what to say, especially when blame cannot be assigned to an individual. I'm fully aware that my life has not been fair. But somehow I always conclude that it’s my own fault. Growing up in a Catholic home and school environment taught me that I would be rewarded for being good, and punished for being bad. Films taught me that good people always had a happy ending, and bad people met a cruel end. And then I was punished in the cruellest way. My body was attacking me. So my thought process began to establish that I had acted in a bad way, and that I was not a good person. But that just was not true. I was a child. It’s so hard to remember that. Eight years old. And I expected myself to be able to deal with this diagnosis. The NHS expected me to be able to deal with this diagnosis. My ten year old sister was expected to deal with this. And people are wondering why there is such a mental health crisis arising. Patients have to willingly ask for psychiatric help when they are diagnosed. And when life is not fair, people keep to themselves because they ‘don’t want to bother anyone with their own problems’.
So yes, my life has not been fair. I have not been given the same opportunities as ‘normal’ people, and this is what I find so frustrating. I am the only person who can help me get better. I was the one who went through the entire physical and emotional trauma. It was me lying in that hospital bed, struggling just to stay alive. And you’re responding to my experiences with the phrase ‘life isn’t fair’? I think I'm aware of this. Bringing a generalisation of your attitude towards life does not validate my statement, whatever it may have been. Responding with ‘that must have been hard for you’ or even ‘shit, that sucks’ is more helpful than trying to compare my experience with your own, or anyone else’s. Also, apologising has quite a detrimental effect. When I explain my past to a new person, 90% of the time I receive an apology. They’re either an acquaintance, apologising for bringing it up, or a family member, apologising for the fact that it happened. This again links back to the natural human want to assign blame. And it makes the individual explaining their past feel guilty for making the other person sad/apologetic.

Overall, I feel like what I'm trying to explain is that you must carefully consider your response so as to validate people’s feelings. Avoiding stereotypical phrases like ‘life isn’t fair’ and ‘there’re people much worse off than you’ will help with this, and lessen the impact over time on the person suffering. After all, when your emotions are invalidated again and again, you stop trying to explain. You stop trying to reach out because it feels useless, and this is even more unfair. 
 
 
Sophie Hartley xo